I participated in an Influencer Activation on behalf of Influence Central for Scleroderma Awareness. I received a promotional item to thank me for my participation
June is Scleroderma Awareness Month. Don’t know what Scleroderma is? You’re not alone. It’s an autoimmune disease that affects thousands of people, but there’s very little awareness of it.
Some people have a vague notion about what Scleroderma is, because “sclero” means “hard” and of course “derma” means “skin” at that’s been the most prevalent description of it in the media. But that’s just one of the symptoms a suffer can experience and the most visible. What you can’t see is the internal damage being done – lung scarring, kidney failure, intestinal disorders, and even the brain involvement. My nephew has systemic scleroderma that has been threating his brain which can ultimately cause cognitive impairment, headaches, and even death. He was diagnosed well before his teens.
Taking the Scleroderma Pledge
Scleroderma has no known cause and no cure. Research is necessary, but it’s hard to raise funds for something that people assume they’ll never get. It’s so rare that only 1 in 906 people is afflicted with it and of those, 80% are female.
But even if you don’t know someone with this deadly disease, you can help those that do. During the month of June, please take a moment to pledge to tell someone about Scleroderma. It takes just a few minutes, easily done while you’re out enjoying the summer sunshine, just one simple click to help spread the word and grow the awareness. I would appreciate it and I’m sure my nephew would too.
I would appreciate your support and I’m sure my nephew would too.
Links for Scleroderma Patients & To Find Out More
If you or someone you love has been diagnosed, you’re not alone. There are support groups, treatments centers, new, and information on the latest research. Start your journey by checking out the Scleroderma Research Foundation, the Scleroderma Society of Canada, Scleroderma Aware, and the Scleroderma Foundation. Also, check out these recipes for Scleroderma patients, and tips for dealing with Scleroderma symptoms.
Do you know someone struggling with this disease? Can you spare a moment to help me out by pledging? Thank you.